Case Studies/Genomes Unzipped - Revision history

U.S. Curator: add category

2011-09-05T17:07:57Z

add category

← Older revision		Revision as of 17:07, 5 September 2011
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	== Media ==		== Media ==
	*Genomes Unzipped announcement: [http://www.genomesunzipped.org/2011/03/our-genetic-data-are-now-officially-in-the-public-domain.php Our genetic data are now officially in the public domain]		*Genomes Unzipped announcement: [http://www.genomesunzipped.org/2011/03/our-genetic-data-are-now-officially-in-the-public-domain.php Our genetic data are now officially in the public domain]

			[[Category:USA]]

CCID-jane: /* Media */

2011-03-22T18:03:40Z

Media

← Older revision		Revision as of 18:03, 22 March 2011
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	== Media ==		== Media ==
	~~'''Please include any screenshots, logos, links to videos, audio files, press hits, etc. To upload a file, open a separate window and click through [~~[~~Special~~:~~Upload]]~~.~~'''~~		*Genomes Unzipped announcement: [http://www.genomesunzipped.org/2011/03/our-genetic-data-are-now-officially-in-the-public-domain.php Our genetic data are now officially in the public domain]

	~~Delete~~ the ~~above questions and add text here~~.

CCID-jane: /* Technical Details */

2011-03-22T18:01:42Z

Technical Details

← Older revision		Revision as of 18:01, 22 March 2011
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	== Technical Details ==		== Technical Details ==

	~~'''Provide any technical~~ details of the ~~implementation here''~~'		See http://www.genomesunzipped.org/data for details on the different ways to access and download the data, including access to the project's API.

	== Media ==		== Media ==

CCID-jane: /* Overview */

2011-03-22T17:59:44Z

Overview

← Older revision		Revision as of 17:59, 22 March 2011
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	}}		}}
	== Overview ==		== Overview ==
	The Genomes Unzipped project is aimed to provide consumers with independent information about genetic testing, developments in the field of genetics, and the genetic testing industry. Genomes Unzipped consists of a group of volunteer researchers from the field of genetics and various legal and public health specialists in genomic technologies. These volunteers have opened their genetic data by releasing it into the public domain via the CC0 public domain dedication. Genomes Unzipped project data is available both as [http://www.genomesunzipped.org/data raw data] and as part of a [http://www.genomesunzipped.org/jbrowse/ custom browser]. The data may be used by anyone for any purpose without restrictions to the fullest extent allowable by law.		The Genomes Unzipped project is aimed to provide consumers with independent information about genetic testing, developments in the field of genetics, and the genetic testing industry. Genomes Unzipped consists of a group of volunteer researchers from the field of genetics and various legal and public health specialists in genomic technologies. These volunteers have opened their genetic data by releasing it into the public domain via the CC0 public domain dedication. Genomes Unzipped project data is available both as [http://www.genomesunzipped.org/data raw data] and as part of a [http://www.genomesunzipped.org/jbrowse/ custom browser]. Genetic data is directly linked to each person's identity, and includes other relevant information such as medical history, physiological characteristics, and other traits. The data may be used by anyone for any purpose without restrictions to the fullest extent allowable by law.

	== License Usage ==		== License Usage ==

CCID-jane: /* Impact */

2011-03-22T17:57:51Z

Impact

← Older revision		Revision as of 17:57, 22 March 2011
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	== Impact ==		== Impact ==
	~~'''What is~~ the impact of ~~this CC-enabled project or resource? Specifically~~, ~~what has~~ the ~~license enabled that otherwise would not exist? Provide statistics or other data if possible.'''~~		Since Genomes Unzipped adopted CC0 in September 2010, the impact of opening their data is yet to be determined. However, the group does hope several outcomes will result, specifically:

	~~Delete~~ the ~~above questions~~ and ~~add text here~~.		:"By engaging in “public personal genomics” we hope to inform wider discussion about the benefits, risks and limitations of genetic testing, provide a test data-set for new tools developed (by us and others) for analysing genetic data, and to foster a diverse community of individuals interested in exploring their own genomes."

			A [http://www.genomesunzipped.org/project/consent number of factors] were taken into account before volunteers contributed their genetic data.

	== Technical Details ==		== Technical Details ==

CCID-jane: /* Motivations */

2011-03-22T17:52:02Z

Motivations

← Older revision		Revision as of 17:52, 22 March 2011
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	== Motivations ==		== Motivations ==
			The group has [http://www.genomesunzipped.org/project cited] the following reasons for opening their data (under [http://creativecommons.org/licenses/by-sa/3.0/ CC BY-SA]):

	~~'''How did~~ the ~~author or organization first hear about Creative Commons? Why did they choose to license under Creative Commons? Which license did they select~~ and ~~why? Any other issues you may have come across/comments you’d like~~ to ~~make.'''~~		:"we want to share the results of scientific analysis of our own genomes, and as proponents of open data access most of us believe that doing good science means releasing complete data for others to investigate;

	~~Delete~~ the ~~above questions~~ and ~~add text here~~.		:we hope that releasing our data publicly will help to guide useful discussions about genetic privacy and the benefits, risks and limitations of genetic information in general;

			:many of us believe that the ideal resource for genetic research is large open-access, non-anonymous research databases such as the Personal Genome Project, and that sharing linked genetic and trait information openly with the wider community is a public good – and we hope that our own experiences will encourage others to participate in open research projects;

			:we all believe that many of the fears expressed about the dangers of genetic information are exaggerated, and see this project as an opportunity to have a constructive public discussion about the truth behind these fears;

			:given the ease with which a dedicated snoop could obtain genetic information surreptitiously (via shed skin, hair or saliva, for instance), some of us argue that the whole notion of genetic privacy is illusory anyway – while releasing our data online makes it easier for people to get hold of it, this is a difference of degree rather than kind."

	== Impact ==		== Impact ==

CCID-jane: /* Overview */

2011-03-22T17:44:38Z

Overview

← Older revision		Revision as of 17:44, 22 March 2011
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	}}		}}
	== Overview ==		== Overview ==
			The Genomes Unzipped project is aimed to provide consumers with independent information about genetic testing, developments in the field of genetics, and the genetic testing industry. Genomes Unzipped consists of a group of volunteer researchers from the field of genetics and various legal and public health specialists in genomic technologies. These volunteers have opened their genetic data by releasing it into the public domain via the CC0 public domain dedication. Genomes Unzipped project data is available both as [http://www.genomesunzipped.org/data raw data] and as part of a [http://www.genomesunzipped.org/jbrowse/ custom browser]. The data may be used by anyone for any purpose without restrictions to the fullest extent allowable by law.
	~~'''Please~~ provide ~~an overview~~ of the ~~work~~. ~~Describe~~ the ~~author or organization (location, funding~~/~~business model, partner organizations), objectives, current projects~~.~~'''~~

	~~Delete~~ the ~~above questions and add text here~~.

	== License Usage ==		== License Usage ==

CCID-jane at 17:12, 22 March 2011

2011-03-22T17:12:14Z

← Older revision		Revision as of 17:12, 22 March 2011
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	{{Case Study		{{Case Study
			\|Description=Genomes Unzipped is a project that aims to inform the public about genetics via the independent analysis of open genetic data, volunteered by a core group of genetics researchers and specialists.
	\|Mainurl=http://www.genomesunzipped.org/		\|Mainurl=http://www.genomesunzipped.org/
			\|Author=Genomes Unzipped
	\|Tag=data, genome		\|Tag=data, genome
	\|License short name=CC BY-SA, CC0		\|License short name=CC BY-SA, CC0

CCID-jane at 15:56, 22 March 2011

2011-03-22T15:56:31Z

← Older revision		Revision as of 15:56, 22 March 2011
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	\|Tag=data, genome		\|Tag=data, genome
	\|License short name=CC BY-SA, CC0		\|License short name=CC BY-SA, CC0
			\|CC adoption date=2010
	\|Format=Data		\|Format=Data
	\|Country=United States		\|Country=United States

CCID-jane: /* License Usage */

2011-03-04T19:49:55Z

License Usage

← Older revision		Revision as of 19:49, 4 March 2011
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	== License Usage ==		== License Usage ==
			[http://www.genomesunzipped.org/data Genotype data] on Genomes Unzipped is waived into the public domain using the CC0 public domain dedication:

	~~'''Please specify~~ the ~~license adopted. How is the license applied? Can you provide any available statistics? What~~ has ~~been the author~~ or ~~organization's experience with Creative Commons licenses so far – what have been the benefits and lessons learned?'''~~		:"To the extent possible under law, Genomes Unzipped has waived all copyright and related or neighboring rights to Genomes Unzipped genotype data."

	~~Delete~~ the ~~above questions and add text here~~.		All other content on the Genomes Unzipped website is licensed under [http://creativecommons.org/licenses/by-sa/3.0/ CC BY-SA].

	== Motivations ==		== Motivations ==